Articles and presentations

Participating in teams working with patient involvement occasionally
leads to coauthored public reports and articles. From time to time Neil is also invited to make public or semi public presentations.

A selection of recent published articles and presentations

TypeTitel Journal or eventDateLink
ReportBetter Patient Involvement in HTA – 360° Research leads to comprehensive recommendations.Published by HTAiOctober, 2023Link
ArtikelPatient Engagement and Patient Experience Data in Regulatory Review and Health Technology Assessment: A Global Landscape Review.Therapeutic Innovation & Regulatory Science. SpringerSeptember, 2023Link
ArtikelBuilding from Patient Experiences to Deliver Patient-Focused Healthcare Systems in Collaboration with Patients: A Call to Action.Therapeutic Innovation & Regulatory Science. SpringerJuly, 2022Link
Presentation. The link leads to a Podcast with a recording of the presentation. Neil starts around 48 seconds after the beginning of the podcast.Health Technology Assessment: Global alignment of systems, stakeholders and emerging trends.Oxford University: The presentation was part of the “Economics and Regulation in Translational Science module” which is part of the MSc in Translational Health SciencesDecember, 2021Link
ArtikelDeep Dive; PPI abroad: A patient advocacy perspective.
– The evolving practice of patient and public involvement in Europe and The United States.
Swiss clinical trial platform – Regulatory Affairs PlatformIssue 6, 28 October 2021Link
ArtikelBest-practice guidance for the health technology assessment of diagnostics and treatments for COVID-19.ZENODOSeptember, 2021Link to article.

Link to press release.
ArtikelValuing patient engagement: reflexive learning in evidence generation practices for health technology assessment.Social Science & MedicineMay, 2021Link
ArtikelSustaining Meaningful Patient Engagement Across the Lifecycle of Medicines: A Roadmap for Action.Therapeutic Innovation & Regulatory Science (TIRS)May, 2021Link
ArtikelThe Role of Patient Experience in the Value Assessment of Complex Technologies – Do HTA Bodies Need to Reconsider How Value is Assessed?Health PolicyMarch, 2021Link
ArtikelUnderstanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study.Health ExpectationsFebruary, 2021Link
ArtikelPutting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments.The Patient – Patient-Centered Outcomes ResearchJuly, 2018Link
ArtikelWhat do stakeholders expect from patient engagement: Are these expectations being met?Health Expectations – An international Public Participation In Health Care and Health PolicyJune, 2018 Link
ArtikelPatient Involvement in Health Technology Assessment pp 419-427: Reflections for Future Development – SpringerMay, 2017Link
ArtikelPatient Centricity and Pharmaceutical Companies: Is It Feasible?SAGE journals March, 2017Link
ArtikelStrengthening international patient advocacy perspectives on patient involvement in HTA within the HTAi Patient and Citizen Involvement Interest Group – Commentary.BMC January, 2017Link
ArtikelMoving Center Stage: patients claim their role in healthcare.farmeconomia – Healtheconomics and therapeutic healthcareJanuary, 2016Link