Articles and presentations

Participating in teams working with patient involvement occasionally
leads to co-authored public reports and articles. From time to time Neil is also invited to make public or semi public presentations.

A selection of recent published articles and presentations

TypeTitel Journal or eventDateLink
ArtikelPatient Engagement and Patient Experience Data in Regulatory
Review and Health Technology Assessment: Where Are We Today?
Therapeutic Innovation & Regulatory Science. Springer NatureApril 2025Link
ArtikelEthical challenges for Health Technology Assessment (HTA) in the evolving evidence landscape.Cambridge University PressNovember 2024Link
ReportBetter Patient Involvement in HTA – 360° Research leads to comprehensive recommendations.Published by HTAiOctober, 2023Link
ArtikelPatient Engagement and Patient Experience Data in Regulatory Review and Health Technology Assessment: A Global Landscape Review.Therapeutic Innovation & Regulatory Science. SpringerSeptember, 2023Link
ArtikelBuilding from Patient Experiences to Deliver Patient-Focused Healthcare Systems in Collaboration with Patients: A Call to Action.Therapeutic Innovation & Regulatory Science. SpringerJuly, 2022Link
Presentation. The link leads to a Podcast with a recording of the presentation. Neil starts around 48 seconds after the beginning of the podcast.Health Technology Assessment: Global alignment of systems, stakeholders and emerging trends.Oxford University: The presentation was part of the “Economics and Regulation in Translational Science module” which is part of the MSc in Translational Health SciencesDecember, 2021Link
ArtikelDeep Dive; PPI abroad: A patient advocacy perspective.
– The evolving practice of patient and public involvement in Europe and The United States.
Swiss clinical trial platform – Regulatory Affairs PlatformIssue 6, 28 October 2021Link
ArtikelBest-practice guidance for the health technology assessment of diagnostics and treatments for COVID-19.ZENODOSeptember, 2021Link to article.

Link to press release.
ArtikelValuing patient engagement: reflexive learning in evidence generation practices for health technology assessment.Social Science & MedicineMay, 2021Link
ArtikelSustaining Meaningful Patient Engagement Across the Lifecycle of Medicines: A Roadmap for Action.Therapeutic Innovation & Regulatory Science (TIRS)May, 2021Link
ArtikelThe Role of Patient Experience in the Value Assessment of Complex Technologies – Do HTA Bodies Need to Reconsider How Value is Assessed?Health PolicyMarch, 2021Link
ArtikelUnderstanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study.Health ExpectationsFebruary, 2021Link
ArtikelPutting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments.The Patient – Patient-Centered Outcomes ResearchJuly, 2018Link
ArtikelWhat do stakeholders expect from patient engagement: Are these expectations being met?Health Expectations – An international Public Participation In Health Care and Health PolicyJune, 2018 Link
ArtikelPatient Involvement in Health Technology Assessment pp 419-427: Reflections for Future Development – SpringerMay, 2017Link
ArtikelPatient Centricity and Pharmaceutical Companies: Is It Feasible?SAGE journals March, 2017Link
ArtikelStrengthening international patient advocacy perspectives on patient involvement in HTA within the HTAi Patient and Citizen Involvement Interest Group – Commentary.BMC January, 2017Link
ArtikelMoving Center Stage: patients claim their role in healthcare.farmeconomia – Healtheconomics and therapeutic healthcareJanuary, 2016Link